DJ was admitted for a two day stay at the Children's Hospital from September 1st -3rd for an extended EEG. While we were there we met with the epileptologist that DJ's neurologist turned his care over to. We also met with the neurosurgeon that will be preforming DJ's hemispherectomy along with the speech, physical, and occupational therapists that he will be working with after surgery.
We have set the date for surgery for September 8th at 8:45am. Tuesday the 7th DJ has three different appointments to prepare for Wednesdays surgery. Due to the rapid progression of DJ's condition it is in his best interest to have the hemispherectomy sooner than later.
As early as 48 hours after surgery DJ will start therapy to help regain his speech, movement in the right side of his body, and all other basic skills he could possibly lose from surgery.
We'll post updates as soon as possible. Thank you all for the love, support, kind words, and especially prayers for our little man.