Monday, September 13, 2010

September 13, 2010

DJ had a great night last night compared to some previous ones. He was able to sleep all night long...except for a few times when the nurses had to reposition him but he went right back to sleep. He was sleeping when his Tata Art and sister Cianna left for the airport early this morning so they gave him a kiss while he was sleeping. You could tell by the smiles on his face he enjoyed having them both here with him this past week. Fortunately DJ's Aunt Kim flew in from Arizona this morning and when he saw her gave a great big smile and hug. To see him light up everyday when he has visitors is a blessing. Today he got an extra special surprise when he got handmade get well cards made by all the kids in his kindergarten class at Turnberry Elementary. 

Today DJ started physical therapy two times a day and will begin speech therapy soon. All DJ's therapist are wonderful and very caring...even though he is showing frustration with them here in the beginning. It is nice to see the fight in DJ as he shows the therapist his strong will. The therapist say he is definitely showing day to day improvement. Since DJ loves music so much we also want to look into music therapy for him which we have heard works wonders for children. 
DJ is now playing the XBOX with daddy...I guess even brain surgery couldn't stop him from playing that! Since DJ can't move his right arm or hand daddy does the the buttons on the right side of the controller and DJ controls the left side of it. Daddy is definitely getting better with DJ's help.

We have got get well cards and prayer grams in the mail and want to thank everyone for their continued love and support. We can not thank everyone enough for all the prayers!

"Once you choose hope, anything is possible" -Christopher Reeves

10 comments:

  1. love hearing this!

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  2. Another good report! I am loving everything I hear about DJ these days, but not as much as I love this little guy.

    Uncle John

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  3. Your sister is already missing you like crazy she did not even want to goto dance tonight. I promise we will be back soon to visit! We love you little man!

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  4. Sooo good to hear! Love the spunk in that boy!

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  5. What wonderful news! A care package should be there by the weekend. Take care, DJ, and keep up the great work! We are so proud of you! You truly are a Super Hero!

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  6. Great to hear that you are doing so well. I look forward to hearing about your progress. All our love!

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  7. Great job DJ keep up the good work!! We are thinking of all of you and continue to pray for your quick recovery!! love from indiana janie, joy and family

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  8. Oh Kristen, It is so good to be able to follow DJ'S journey this way....I'm proud of him but mostly I'm so very proud of you and Dino, for being so brave and never giving up, you will always have my support in whatever you do...you are real troopers....I am blessed to have you in my life.....Prayers always comin your way
    Love, Molly Ralston

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  9. I love you DJ. Daddy said I can come stay the night with you on the weekend. I'll bring some books to color with you.-Tiana

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  10. Liz and Ainsley LynettSeptember 21, 2010 at 5:14 AM

    HI there...my name is Liz Lynett, my daughter Ainsley is in DJ's kindergarten class. I have been reading your blog and just wanted to let you know that you're not alone. Ainsley was diagnosed with leukemia last year and, we too, basically lived at Children's Hospital. We have been talking a lot about DJ with Ainsley and she would love to drop something off for him to keep him company/occupied. Would this be ok? I could even bring you guys coffee, lunch, whatever you need. However, I also know that you get a TON of goodies when your child is sick, so if you have too much in the room already, don't hesitate to say no. Just let me know when you have some time. lynett1052@yahoo.com We're thinking of you constantly and know how scary it is, but you couldn't be at a better hospital!
    Liz and Ainsley Lynett

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